Rage Against the Button! Fashion & RA.

I hate buttons

From the age of a small child I had an aversion to buttons, not the delicious chocolaty ones but the ones that seemed to be on every type of clothing imaginable.

Don’t get me wrong, I think they are an amazing invention, from back in the day to allow people in and out of their clothes with ease and still covering all the essentials! However even as a child I hated them.

Now as an adult I can’t explain it except that perhaps I knew what was coming down the line, perhaps I had a premonition of sorts! You see, now buttons are not just aesthetically displeasing to me they are the bane of my life! The little ones, with the tiny open holes are the worst. If you have rheumatoid arthritis, especially in your hands I can only guess they have provoked a few angry grunts from at the very least.  

Bending my fingers and trying to twist a tiny round item into a horizontal whole can seem impossible during a flare up. School shirts were the worst when I was first diagnosed. In fact, I got so sick of the struggle each morning I attempted to wear a white T-shirt under my school jumper instead. Sometimes I would get away with other times I wouldn’t.  I was never quite brave enough to tell the teacher why I wasn’t wearing a shirt. The cold hard truth that dressing myself was too painful,  was just too embarrassing for me.  The ONLY people who knew just how bad things were back then were my parents and my amazing sister who would have to dress me practically every day for 6 months of my leaving cert year.

I LOVE LEGGINGS

And it’s not just buttons, I am a fan of leggings! I know , ok they are often described as a sin against fashion but I love them! I don’t wear them instead of pants or anything but I wear them almost every day. Why you ask? Because trying to get jeans or tights on during a flare up or early in the morning is reserved for special occasions. Socks are enough of an ordeal on a regular basis. 

My style consists of at least 90% dresses and leggings. I still like to look pretty but I march to the beat of my own drum and comfort is more important to me. Leggings are lose enough so getting them on doesn’t mean pulling them up step by step like tights or having zips or buttons to zip/close like jeans!

These are things you never even think of when you don’t have something like RA. You can’t understand why someone wouldn’t want to wear jeans or why they don’t wear makeup everyday even to work. And why would you, I certainly took these things for granted when I was healthy. 

I have always liked make up, but recently I have feel in love with it. Partially due to having another blog that from time to time trials new beauty products. Whilst I love how much  how confident I feel with a bit of a make up on, sometimes it’s just not worth it.  I would rather go to work with no makeup on and be in top form to get some work done than have a full face on and be in agony because I exhorted myself. Same with my hair, some days it nice and straight and down and maybe even shiny…. then others times it’s up in a bun and to be perfectly honest probably uncombed.

MESSY BUN

Combs/brushes are on buttons side of this war. They don’t want us to look good, or even decent they must have meetings where they get together with toothpaste cartons and medicine caps and think of unique new ways to make our lives just that little bit harder.

Ok, I obviously don’t think my everyday items come to life when I’m sleeping and have epic battles and adventures (That’s just my teddies, Duh!) But there are just some everyday routine things that frustrate me and I’m guessing that goes for most people who have sort of a debilitating illness or disease.

So some days I am going to look like someone who belongs back in the 80’s with my leggings (and I am a sucker for bright clothes). I’ll have a naked face and a hair stuck in a bun. I might be wearing comfortable shoes and maybe even cosy sock in my boots…and I may not look very stylish at all…but I am way more confident in my comfort then if I was wearing Jeans, a blouse, my makeup perfect and my hair an image of perfection. Purely because I also won’t be red eyed and crying.

smile is the best

To me comfort is stylish, I will most likely never be a trend setter, I will never be the girl who always has her nails done, make up on and hair perfect but I’ll be comfy and when I am comfortable I am happy, fun to be around and laughing which personally I think is the most stylish accessory a girl(or a fella for that matter! ) can wear!

 

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5 Things People Might Say When You Tell Them You Have Arthritis.

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Once you tell someone you have arthritis, well they are usually expected to respond. Some don’t know what to say, some say the right thing and some couldn’t say anything worse if they tried. Here are some of the most common responses I got!

  1. “You’re too young to have that”

Most people do not realize that even small children can have arthritis and that two thirds of those diagnosed with arthritis in the world are under 65! Some people may even think that miraculously while you only look like you’re in your 20’s you must somehow remember when the Titanic sank! Just remember to stay calm, it’s not their fault they don’t know everything about your condition. They will learn.

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  1. “You Don’t Look Sick”

People will see you living out your daily life and I find often people say “Oh well you don’t look like there’s anything wrong with you”, I just tell them “You haven’t seen me on a bad day yet!” I just think of it like this if people can’t tell I’m sick I must be doing a pretty good job of getting on with life.

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  1. ‘You can’t do that!’

People may try to tell you that there are things that you can’t do now. Don’t believe them, because only you know what you can’t do! Also try and remember it may seem like they don’t have faith in you or your ability but really they are just looking out for you because they don’t want you to push yourself and get hurt.

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  1. “You Can Do This”

Once again when people tell you that you can still do something once you’ve told them that you can’t, remember that only you know what you can and can’t do. Don’t push yourself to please others. You have to decide what is worth the pain the next morning and what you are physically capable of.  Often they will tell you this by means of supporting you, so while you may want to murder them for saying it, try to understand they just don’t want you to miss out on anything!

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  1. “Oh right, If you need me to help with anything let me know”

Most people don’t really want to know everything there is to know about your condition. They just want to get on with what has to be done, or they don’t see what your condition has to do with your friendship. Most people even offer to help should you need it. So don’t be afraid to tell anyone, its not a big deal to them so it shouldn’t be to you!

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I would love to hear the response you received when you told people about your arthritis or what you said to someone with the condition (or something similar). Comment below or email me at glorialouiseshannon2392@gmail.com , I would love to hear from you!

You Can Do This!

Torcc Waterfall 1

I stood half way up a small hill looking at Aidan, and the rest of the hill just past him. Aidan and I were on a weekend away to Killarney over the summer and we visited Torc Waterfall. Torc Waterfall was beautiful and if you have ever visited you will know that it really is a lovely place. I was feeling sore and even the 500 metres of rough ground from the car park to the waterfall seemed like it was defeating me.  We had looked at the waterfall, taken some pictures, sat and talked by it and all I could think about was the huge row of steps behind us, which I knew Aidan would want to explore.

In situations like this I often feel like a burden or a kill joy to my friends. It can be tough, not just for me but for my friends too. They want me to be able to take part in activities but they don’t want to see me in pain, whilst at the same time they don’t want to have to miss out just because I have to. Something they don’t know is sometimes I really am okay with that. There has been and will be many more times where I will have to miss out on an activity, and that really is okay. It’s fine because I would rather miss out on something than be in pain for days just because I pushed myself. I have learned to weigh up the situation around me and decide whether something will be worthwhile in the end or not.

Torc Waterfall 2

That day was not one of those times though! I really wanted to see what was at the top of those stairs, not just for Aidan but also for me. I braced myself, and took the first step in what looked like a never ending staircase. It’s at times like these I really am grateful for my support network, Aidan being a major part of that. We have been a couple for just over three years and he is really great with regards to my condition. He has always been understanding and supportive since the day I told him.

Aidan is not exactly the sporty type but a large hill or a long walk would do little to scare him. He has a very curious nature and whenever we go anywhere he wants to explore. This means that sometimes I am left telling him to go ahead without me, something he will rarely do. It can be frustrating to watch him look longingly at a long walk way or steep hill and just walk away, both of us leaving unsatisfied. I want him to be able to do all that he can do despite the fact that I am just not up to things like that a lot of the time. I see his brother and his girlfriend play fighting and even messing with airsoft guns, having shooting competitions and I think, “Jesus I can’t even hold the gun never mind shoot it”, and honestly I often feel as though he misses out on a lot because he fell in love with me.

However on that day at the Waterfall Aidan pushed me, but I needed it. It wasn’t actually climbing the stairs that was bothering me as much as not knowing when the stairs would end! I was already feeling sore and tired, what if the stairs went on forever? Obviously that was an irrational thought but when you are there looking at the steps in front of you, you don’t think like that. You just think “I can’t do this!”
The View One

I looked at his face and I saw his belief in me, as corny as that sounds. Knowing that he knew I could do it, I felt like I could. In fact I knew I could. Trust me I still moaned the whole way up, I panted like a dog in heat and I was sweating like a pig but I did it. Slowly mind you, but I made it to the top, I stopped plenty of times and was coached by Aidan but I got to the top. After that, I made it through the whole “yellow trail” which I must point out is the easiest walking trail but I still felt very proud of myself. The views at the higher points of the walk were amazing and though it took a lot of effort on my part and patience on Aid’s part it was definitely worth it.

Yes I have a lifelong illnesses that makes my bones ache but I am lucky that I can still walk, I can still climb. Yes, it is tough but someday I really might not be able to do these things and I am learning that it really is worth at least trying while I still can.  No pain, no gain!

You just have to remember that sometimes “You can do this!” you just have to try a bit harder than the people around which really makes the experience all the better.

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